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Thursday 2004-05-13 - 10:20 p.m. - +
clix? A day in the shadow of Cushing's. Yesterday was a busy day with much to think about and deal with. Sort of internally dealing with things. It helped a lot to talk to Skye though, talking things through with her and trying to see the positive things. Today I went to work of course and had to explain everything to everyone. It started right away. When I got inside the center I met Gitte and Lone. Gitte was explaining to Lone that I wouldn't be coming to work today. So they were a bit surprised to see me. I talked to Gitte in the hallway. Explained what was going on. And she was very nice and understanding about it. Then I went into the computer room and talked to Lone about it. Told her I wouldn't be there next week. Thursday is a holiday and the center is closed on Friday. Wednesday is x-ray day and Gitte said it was okay that I stayed home Monday and Tuesday for the urine samples. Yes. Lone was very nice and understanding too. And I could almost see the metaphorical light bulb turn on over her head when I mentioned that Cushing's was the reason I get so tired. She has really noticed it. How I sit and lose all my energy at the computer. More than once she's told me to go home early. And when Gitte wanted me to start staying till 14.30, well Lone insisted I should leave at 13 like the others. So she has really been aware that I've had some problems there. And like she said, it's good to know the reason now. A little later I went down to the gym. I did a sort of half-hearted workout. I was starting to feel tired, and my head was hurting a little. And the Cushing's cloud was making me mentally tired. But I did a little. And then talked to Gillian. Told her that she was right, I did have something wrong with my metabolism. She had been suspicious of it because I hadn't really lost weight lately, even though I've been working out hard. So she wasn't that surprised. She was surprised that it was Cushing's of course. And she was, of course, very nice and understanding too. Her husband has had an operation because of something similar. Not Cushing's but something related. So she understood very well. She's very nice, she knows all about different country relationships. And hormonal disease. Funny how many things we have that we can relate to in each other. Then I went back to the computer room. And after 5 minutes Charlotte the psych came in to see if I was okay. Seems that Gillian had called her up on the intercom and told her about the situation. So she came in and asked if I was doing okay and if I wanted to talk about it and all. Very nice and understanding. I told her I was okay, I was doing fine. And she told me I could always come and talk to her if I needed it. So at that point I had talked to four very nice and understanding people about Cushing's. It gets a little much. Not that I don't appreciate that they're nice and understanding. It was nice. Really. It was just getting a little much. I left around noon, Gitte said it was fine. That's one of the good things about people knowing about this. They understand if I can't make it through the day. I went downtown and collected money at the bank. Renewed my bus card. And then I went to Bogshoppen and bought me three English books and two Playstation games. Used and cheap. But I figured I deserved to spend a little money on myself after all this fuzzing. On my way home I saw one of my old teachers from my schooldays at Gammelgaardsskolen. Kirsten. I didn't recognise her at first. Just some lady in a crowd of school kids. But then she said something. And her voice I recognised. Immediately. I don't know if she saw me. I don't know if she'd recognise me if she saw me. It's so long ago now. She has seen so many kids since then. It was fun seeing her though. Hearing her. But that's about it. Day two of my life with Cushing's. Presumably. Tomorrow is another day. It's the big wedding day in Denmark. I must try to write something about it tomorrow. I am nothing if not a royalist. The nurse was very surprised yesterday when she took the blood samples from me. It's not often they see blue blood. np: nothing ... ...Frederik og Mary boller i karry back and forth clix
try to understand the ones I love and their demands so unfair when they can't see that I'm the boy who really needs your love i suppose I just want peace diaryland to be free at last |
you can watch me bleed